Learn more about getting involved in aphasia research studies.
Earlier this year, Dr. Esther Kim gave a presentation on participating in aphasia research at our Let’s CHAT get-together.
Dr. Kim explained how research contributes to our knowledge about aphasia. For example, research can tell us about the experiences that people with aphasia have. Research can also investigate different types of aphasia and help us develop treatments to help people with aphasia.
Approximately half of the people at our Let’s CHAT get-together participated in aphasia research. Many said the process was interesting and rewarding. A few people had never participated in aphasia research. Some said they wanted to participate, but they felt nervous. Some worried they would not be fluent enough, or that they would “mess up” in the study.
It is normal to feel nervous when you try something new. Here is some more information to help you decide if you would like to participate in aphasia research:
● Before you participate, the researchers explain the requirements for participants. (participant age, aphasia type, fluency level, time commitment, access to technology, or other criteria.)
● The researchers will explain the process to you in detail. They want to make sure you understand the study, feel comfortable, and are ready to participate.
● It is okay if you “mess up” in the study! Researchers do not expect you to do everything perfectly.
● It is okay to change your mind! You can stop participating in a study at any time.
● Your results contribute to knowledge about real people’s experiences with aphasia.
Where can I find out about aphasia research studies?
– Search for studies (not very aphasia friendly!)
● Sites/labs frequently conducting research – online/Zoom
– Shirley Ryan Ability Lab (Chicago, IL – Northwestern University)
● Ask your SLP/watch your email inboxes!